Invitation to Participate in a Focus Group Discussion – Newborn Screening of Sickle Cell Disease in Kaduna

Kaduna State government through the Ministry of Health and Human Services with partner research bodies and individuals are planning for a pilot study for Newborn Screening of sickle cell disease to inform a national policy. The study is sponsored by Kaduna State government with support of SCORE (Sickle cell cohort research), a charitable research outfit. In view of the evidence on ground for improved care of the sickle person when diagnosis is made at birth, we proposed a focus group disc...
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Honorary Award Presented to Professor Winifred Kaine in Recognition of her Meritorious and Long Service to Patients and Families with Sickle Cell Anemia in Enugu

Professor Winifred Nwazulumasu Kaine was born in Onitsha, Anambra State, Nigeria into the family of Late Justice and Mrs Hyacinth Kaine. She is a native of Ndam Village of Osomari in Ogbaru Local Government area of Anambra State. She attended the prestigious Holy Child College, Ikoyi, Lagos, for her secondary education as a pioneer student and studied for her ‘A’ levels at Blackpool, England. Thereafter. Winnie as she is fondly called by her peers and contemporaries among whom was Prof Olikoy...
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Communique of the Third SCSSN Conference

INTRODUCTION The third Conference of Sickle Cell Support Society of Nigeria (SCSSN) was successfully held at the Enugu Campus of the University of Nigeria with the theme: “Reducing the Burden of Sickle Cell Disease in our Communities” from Wednesday, 23rd to Friday, 25th of August, 2017. THE OVERVIEW: The three-day conference had the presence of a total of 199 participants including sixty-six students and staff of the Community Health Trainer’s School University of Nigeria Teaching Hospital, ...
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SCSSN Chairman’s Speech 2017 Conference

It gives me great pleasure to welcome you all to this historic conference of the Sickle Cell Support Society of Nigeria and the Nigerian Sickle Cell Disease Network. Although we have had 2 previous conferences, this is the first time it is held outside of Abuja and we hope in future, other zones will have the opportunity of hosting us. This is important to raise awareness in all parts of this large and great country. I want to particularly welcome our keynote speaker, Prof. Lucio Luzzatto, w...
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FIOCRUZ Scholarship July 2017 Updates

Dr. Uche Ndidi, Department of Biochemistry, Ahmadu Bello University, Zaria  My research titled "The Effect of Hydroxyurea on Advanced Glycation End-user on Sickle Cell Disease" in Federal University of Bahia is going on well. So far we have finished collection of blood samples from the Hospital (HEMOBA). We have also carried out hematological and biochemical analysis of all the samples. We are currently working on sending same for publication. Currently, we are awaiting Advanced Glycation E...
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International Journal for Hemoglobin Research

Preliminary Evaluation of a Point-of-Care Testing Device (SickleSCAN™) in Screening for Sickle Cell Disease Maxwell M. Nwegbu, Hezekiah A. Isa, Biyaya B. Nwankwo, Chinedu C. Okeke, Uduak J. Edet-Offong, Norah O. Akinola, Adekunle D. Adekile, John C. Aneke, Emmanuel C. Okocha, Thomas Ulasi, Usman Abjah, Ngozi I. Ugwu, Angela A. Okolo, Anazoeze Madu, Ifeoma Emodi, Ahmed Girei, Taiwo M. Balogun, Ijeoma N. Diaku-Akinwumi, Chinatu Ohiaeri, Biobele J. Brown, John A. Olaniyi, Abdulaziz Hassan, Sani Aw...
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ASH Research Award

Letters of Intent are now being accepted online and are due no later than August 31, 2017 at 11:59 p.m. Pacific time. The ASH Global Research Award is the Society’s newest award, designed to support future international scientific leaders, increase hematology capacity, and nurture global collaboration. The award is intended to support hematologists between completion of training and the establishment of their independent careers. The Global Research Award promises to be accessible to individ...
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My Experience in Brazil – Dr Samuel Ademola Adegoke

Introduction Sickle Cell Support Society of Nigeria (SCSSN) had a memorandum of understanding (MoU) with Brazil National Council for Research (Conselho Nacional de Pesquisa - CNPq) in 2013 for postgraduate (PG) studies in sickle cell disease (SCD) in various Brazil universities. The scholarship for the program was provided by CNPq through Oswaldo Cruz Foundation (FIOCRUZ), Brazil. Following the initial advertisement, writing of proposal and phone interviews, I was selected as one of the four ...
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World Sickle Cell Day Celebration 2016

Dear All, It is a pleasure to write to you ahead of the 2016 World Sickle Cell Day Celebrations. It would appear that there has been little public communication from the SCSSN since the outing in June 2015. This is partly because much effort has been put into a number of research projects aimed at improving care for individuals with SCD, which is the society’s main thrust of objectives and priorities. These are blood transfusion services in Nigeria, evaluation of a point-of-care test for sickle...
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