2020 Virtual Conference (UPDATED)

Date: Thursday June 25 2020
Time: 4-7 pm Lagos / 11:00 am EST / 8:00 am PST

Theme: Reducing the Burden of Sickle Cell Disease in Nigeria- Utilizing Evidence and the Role of Stakeholders

Chairs: Professor Adekunle Adekile and Professor Aisha Gwarzo Coordinator: Professor Obiageli Nnodu

Guest Speaker: Dr Maureen Achebe- Brigham and Women’s Hospital, Harvard Medical School, Boston, Massachusetts, USA.


1. Chairman’s opening remarks: NSHBT & SCSSN (10 minutes)
2. FMOH – NCD policy and strategic plan of action 2019-2024 -Dr Alayo Sopekan Desk Officer

SCD, Federal Ministry of Health (10 minutes)

Guest Lecture -Gene Editing for Sickle Cell Disease Dr. Maureen Achebe – Brigham & Women’s Hospital Boston (15 minutes)

  1. Living with sickle cell disease -two patients (10mins)
  2. The progress of the Sickle Pan African Research Consortium (SPARCO) project and feasibility of newborn screening for SCD using POCTs (10 mins) Professor Obiageli E. Nnodu
  3. Brief Reports on Clinical Trials for Hydroxyurea – (30 mins)
  1. a)  Spring Trials from Aminu Kano Teaching Hospital- Dr Shehu (7 mins)
  2. b)  Fixed Low-Dose Hydroxyurea for Adults with SCA in Nigeria- University College Hospital Ibadan, Dr Titi Akingbola (7 mins)
  3. c)  Hydroxyurea treatment in children Professor Uche Agumadu-University of Abuja Teaching Hospital (7 mins)
  4. d)  Dr Olugbenga Ofakunri- Jos University Teaching Hospital (7 mins)

6. Updates from the Zones special emphasis Delta and Kebbi States – Professor Angela Okolo and Dr Umar Kangiwa (14 mins)

7. Ethics of Advocacy, Stakeholders and Community Engagement Work for Sickle Cell Disease (10mins)

8. Oxyurea by Bond Pharmaceuticals (5mins)
9.Other emerging therapies for SCD – Professor Okpala & Professor Adekile (10 mins) 10. Q and A (20 mins)
11. Communique

Rapporteurs: Dr Anazoeze Madu/ Dr Abdul-Aziz Hassan/ Dr Hezekiah Isa/Dr Samuel Adegoke

Meeting Registration

2020 World Sickle Cell Day Celebration Thu, Jun 25, 2020 4:00 PM – 7:00 PM (WAT)

Register here – https://us02web.zoom.us/meeting/register/tZ0oceqoqD8sHt3niDf_NERgjr3m8dSbGTrY